I spoke at a pharmaceutical conference recently. They introduced me as a "Health Activist". One of the pharmaceutical reps asked me what made me decide to become a health activist. I wasn't sure how to answer because I don't really see myself as an "activist". After some though I said, "I realized health care had... Continue Reading →
Shine your light…
My cousin died this week at the age of 36 from a pulmonary embolism. It was a shock. It is painful. She was a ray of light and a good human being. I did not know her well as a kid. She was 10 years younger me and on the side of my family that... Continue Reading →
Here I go again…
I have taken a 2 year hiatus from blogging. Not that I was ever overly proficient but the last two years of my life have held many highs and lows. When I last posted, I was beginning a new biologic. It was a miracle. I saw my ankle for the first time in 7 or... Continue Reading →
The "F" word.
The past few months have been difficult. I've had my medication fail on me. I had been taking Cimzia which I truly loved in the beginning, and it suddenly stopped working. To be fair, I quit taking Methotrexate in December. So I believe that the combo of both Cimzia & MTX were helping but my... Continue Reading →
Make mine a double…
I've been having a rough time with my autoimmune diseases lately. I'm chronically tired, with swollen and hot joints that seem to move around my body without much rhyme or reason. It's exhausting. My rheumy wants me to start taking Enbrel twice a week. I'm really not sure that Enbrel is the biologic for me.... Continue Reading →
Hiding in plain sight….
When people look at me they never see a person who is "sick". I'm often told, "But you don't look sick!". Who suffering from an autoimmune disease hasn't heard that statement a few hundred times. I try to prevent people from seeing how hard life with my body has been lately. It's been so easy... Continue Reading →
Infections and Biologics and Me, Oh my…
I was at work 5 days ago and my hands suddenly swelled, and I felt odd. I woke up the next morning feeling flu-like and out of sorts. I called off from work and went back to bed. I had every intention of going back to work the next day. I thought it was just... Continue Reading →
Long weekend, nothing accomplished
So MLK weekend of 2012 is coming to an end. This weekend, I had planned to clean my home, get organized, etc. Did I accomplish any of it? Not really. Am I mad at myself? Yes. I feel like during the work week, I am so exhausted by the time I get home. Then on... Continue Reading →
My enemy is my friend…
Living with autoimmune diseases is a never ending journey. I've had people tell me that "But you don't look sick", and "Do you know that you are limping?"...hmmmm....you really think I didn't know that I was limping?Each day is a journey because I never really know how I will be feeling. It's the same with... Continue Reading →
A needle in the haystack…
We survived our first round of acupuncture. Georgia was very well behaved and seemed okay with having needles sticking out of her head. The vet was thorough and really seemed to listen to me as I spoke about my concerns/fears/hopes. I think it is a good fit. Time will tell if Georgia benefits from this... Continue Reading →
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