Good intentions?

Living with chronic illness for almost 30 years gives one a thick skin. I’ve met so many people who love to give me free advice. For the most part, it’s all good intended suggestions, but I often feel stumped on how to respond. Today someone said, “My friend says those infusions you take are bad, they lower the immune system.” I responded with, “Well, then she dosn’t have to take them.” Not my best moment. So I thought I would come up with some responses that all of us can use when given unsolicited advice:

POLITE BUT CLEAR BOUNDARIES

  • “Thank you for thinking of me, but I’m following the plan I set with my medical team.”
  • “I appreciate your concern, but my condition requires specialized care.”
  • “That’s kind of you to offer, but I’m already working closely with my doctor.”
  • “I’m focusing on treatments backed by research and medical guidance.”

FOR PEOPLE WHO GENUINELY MEAN WELL

  • “It makes sense that you’d want to help, but my illness works differently than what you might see online.”
  • “Every chronic illness is unique, and what helps one person might not help another.”
  • “I know that advice comes from a good place, but managing chronic illness is more complicated than it looks.”
  • “I appreciate the thought — truly — but my medical team has already explored that option.”

NEUTRAL + EDUCATIONAL

  • “That’s a common misconception, but the science behind my condition doesn’t support that approach.”
  • “My illness doesn’t respond to lifestyle changes alone, so I have to follow a medical treatment plan.”
  • “Symptoms can improve or worsen for a lot of reasons, so it’s not always as simple as trying a remedy.”
  • “Alternative approaches can help some people, but my condition requires clinical treatment.”

DIRECT AND TO THE POINT

  • “I didn’t ask for advice, but thank you.”
  • “I prefer to stick with professional medical guidance.”
  • “That doesn’t apply to my diagnosis, but I appreciate the thought.”
  • “I’m managing my condition with my doctor — unsolicited advice can be overwhelming.”

LIGHT HUMOR WITHOUT SARCASM

  • “If managing chronic illness were as simple as that, my doctor would be out of a job.”
  • “I wish it were that easy — life would be a lot simpler.”
  • “I’ve heard that one a few times; unfortunately, it doesn’t apply to my condition.”
  • “That remedy is popular! Sadly, my body didn’t get the memo.”

RESPONSES TO COMMON UNSOLICITED ADVICE

“Have you tried yoga?”
→ “Movement helps some symptoms, but it doesn’t treat the underlying illness.”

“You just need to reduce stress.”
→ “Stress management helps, but my condition has medical causes too.”

“Just think positive!”
→ “A positive mindset is helpful, but it’s not a substitute for treatment.”

“You don’t look sick.”
→ “Many chronic illnesses are invisible — symptoms don’t always show.”

“Try this supplement / diet / herbal remedy…”
→ “Some people find benefits, but it’s not appropriate for my condition without medical supervision.”


COMPASSIONATE BUT FIRM BOUNDARIES

  • “I know you’re trying to help. What I really need most is support, not advice.”
  • “Managing chronic illness can be overwhelming, so I try to avoid new suggestions unless they come from my doctor.”
  • “It’s hard to navigate all the advice out there, so I stick to what my medical team recommends.”

Finally, the things I wish I could say, but won’t (probably won’t):

SUBTLE BUT SAVAGE

  • “Thank you for your confidence in your ability to fix a disease specialists still struggle with.”
  • “Is this the part where I clap for you or the part where I pretend to take notes?”
  • “You must be exhausted from carrying all this expertise.”
  • “I’ll try that right after I finish mastering teleportation and time travel.”
  • “Appreciate it. I’ll file that under ‘advice I did not ask for.’”

So what do you say when given unwarranted advice? Leave your thoughts in the comments below.

Leave a comment

Blog at WordPress.com.

Up ↑